June is in Big Sky!

We have made it home! June got cleared from her Boston doctors and we hopped a flight on Wednesday to Big Sky! She did amazing on the flight and seems to be enjoying her home in the mountains. Before we left, June saw her Boston cardiologist, hematologist, and audiologist and they are all still going to be monitoring her from afar which is great. We are seeing a pediatric cardiologist who makes Bozeman visits and is connected to Seattle Children’s hospital. He will communicate with Dr. Kane in Boston and keep him updated on June’s continued recovery and how her heart is functioning.

In terms of blood, June will have her blood drawn once a month here (hopefully right in Big Sky) and the results will be sent to her hematologist Dr. Pollard from Dana Farber – The Jimmy Fund in Boston. She will continue to monitor her counts, look for trends, and hopefully she will not need any treatment (fingers crossed!)

And last but not least, we met with audiology and are tentatively scheduling June to get cochlear implants next summer in Boston. June is profoundly deaf in both ears and we’d like to give her the opportunity to have some hearing and use spoken language as her communication system. Right now she benefits from ASL (American Sign Language) as she is not able to access any auditory information. We are just beginning this process but we’ll keep you posted on what signs we are using with June so when you see her you can use them! It will be quite simple in the beginning, baby signs, but it will be important to establish a communication base for her. Right now we just smile a lot at each other and try to make some good eye contact and silly faces : ) She smiles more often these days and it is so freakin’ adorable!!!