Category Archives: Uncategorized

We are almost outta here! While Boston Children’s has been great, we are ready to get back to house livin’ instead of hospital livin’! June’s chest x-ray and echo-cardiogram looked good! Her chest incision is healing up nicely as well as her chest tube wounds. She didn’t have a great eating day yesterday (fussy andContinue reading “Discharge coming…”

Bustin’ out of the ICU! We are now on the cardiac floor and June had quite a big day! Her 2nd chest tube came out today along with the oxygen and feeding tube. She is now wearing PJ’s, feeding from bottles, and looking a lot more like her regular absolutely adorable self! She is stillContinue reading “June is bustin’ out!”

I got to hold June this am!!! She was awake and giving me some good eye contact (even though I felt like her eyes were saying, “Mom what the heck is going on here!”) It felt really great to hold her and give her gentle hugs and kisses. June got one chest tube out todayContinue reading “Who doesn’t love a hand hold?”

June’s recovery has begun! Our good friend Wynne made this heart collage for June’s hospital room entitled “Heart on Fiyer.” We love it and hung it up today! June’s breathing tube came out this evening. She is on some oxygen to help her in this transition. She is still on IV fluids for nutrition butContinue reading “Heart on Fiyer (and on the mend!)”

June is out of surgery! Dr. Kaza cut an incision in her valve to open it up and the pressure has already reduced by 50%. He also patched up the hole in her heart and he was pleased with the outcome. She is recovering in the cardiac ICU here at Boston Children’s and will beContinue reading “Out of Surgery”

Chris, June, and I arrived in Boston last night in time watch the debate and have a beer in the hotel room. We got to the hospital at 7:30 this am for Pre-Op madness! June had blood drawn, an EKG, chest x-rays, an echo-cardiogram, and various meetings with doctors. She looks healthy and all clearedContinue reading “Almost Go Time”

June was born with pulmonary stenosis which means the valve connecting the right ventricle of her heart to the pulmonary artery is super narrow.  Her heart has to beat quite hard to pump the blood through this narrowing. If you put your hand on her little chest, you can feel how hard her heart isContinue reading “The Heart Backstory”

We are prepping for June’s cardiac surgery on Oct. 17th. Prep includes putting on as many ounces as possible and keeping this little girl healthy. We planned to drive to Philly so June could meet Mimi and Papa along with aunts/uncles/nieces/and nephews. But the drive and exposure to many crowded places so close to cardiacContinue reading “Lots of family love for Junebug”

A daughter, sister, grandaughter, niece, cousin, friend… Junie B. has a lot of fans already! I decided to start this blog so that all those who love this babe stay informed, if they’d like, on her adventures! Her early weeks/months adventures have included a medical helicopter ride and many pokes and thorough examinations by doctors/nurses.Continue reading “b. July 18, 2019: June, Junie B, Junebug”